Bruce Willis sent support from celebrities after dementia diagnosis

‘We love you’: Bruce Willis sent messages of support from Selma Blair, Queen Latifah, Aaron Paul and Ireland Baldwin as stars rally around actor in the wake of dementia diagnosis

  • READ MORE: Bruce Willis’ family announce he has frontotemporal dementia 

Bruce Willis has been sent messages of support from his celebrity friends following the announcement he has  been diagnosed with frontotemporal dementia (FTD) – less than one year after he retired from acting due to his battle with aphasia.

The Hollywood icon, 67, withdrew from acting last year as he began his fight with the illness that caused his language abilities to deteriorate – and now his condition has ‘progressed’ according to a joint statement from his family on Thursday.

FTD affects the lobes of the brain behind the forehead, which deal with behavior, problem-solving, planning and emotions –  with symptoms including personality changes, obsessive behavior and speaking difficulties.

Stars including Aaron Paul, Selma Blair, Alyssa Milano, Ireland Baldwin, Paris Hilton and Marlon Wayans took to social media to laud Willis and send their love to the Die Hard star and his beloved family. 

Breaking Bad star Paul wrote on Rumer Willis’ post: ‘Love you so much my friend! Sending hugs to you and that beautiful family of yours. Your pops is such a damn legend.

Bruce Willis was sent messages of support from his celebrity friends following the announcement he has been diagnosed with frontotemporal dementia (FTD)

Wilmer Valderrama wrote: ‘Sending you all my love’ while Selma Blair wrote: ‘Sending love.’

Queen Latifah wrote: ‘God bless you my brother we love you!!! all the best. Thank you and your family for all the entertainment!!!’

Ireland Baldwin commented: ‘Sending you and your family all my love, always’ while Paris Hilton wrote: ‘Sending love to you all’ and Alyssa Milano wrote: ‘Sending you love.’

Wayans wrote on Willis’ ex-wife Demi Moore’s post: ‘Love to you, him and the family. You’re an amazing human. It’s beautiful to honor him and your family the way you are. Makes my heart smile

Helena Christensen penned: ‘Sending you so much love, it is so wonderful you’re such a tight knit family, it makes all the difference 

Rita Wilson wrote: ‘Thank you for sharing this with us. Sending Bruce and all the families love.’

Willis’ wife Emma Heming, ex-wife Demi Moore and five daughters shared his diagnosis in a joint statement posted on The Association for Frontotemporal Degeneration’s website, which read: ‘Our family wanted to start by expressing our deepest gratitude for the incredible outpouring of love, support and wonderful stories we have all received since sharing Bruce’s original diagnosis. 

‘In the spirit of that, we wanted to give you an update about our beloved husband, father and friend since we now have a deeper understanding of what he is experiencing.

Stars including Aaron Paul, Selma Blair, Alyssa Milano, Ireland Baldwin, Paris Hilton and Marlon Wayans took to social media to laud Willis and send their love to the Die Hard star and his beloved family.

Bruce Willis’ family said the star’s condition had ‘progressed’. FTD affects the lobes of the brain behind the forehead, which deal with behavior, problem-solving, planning and emotions (pictured with L-R wife Emma Heming, ex-wife Demi Moore and daughters Scout, Tallulah, Mabel, Evelyn and Rumer)

The retirement announcement marked an end to Willis’ decades-long career, during which he has earned a Golden Globe award and two Emmys (pictured 2019)

‘Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD). 

‘Unfortunately, challenges with communication are just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis.

‘FTD is a cruel disease that many of us have never heard of and can strike anyone. For people under 60, FTD is the most common form of dementia, and because getting the diagnosis can take years, FTD is likely much more prevalent than we know. 

‘Today there are no treatments for the disease, a reality that we hope can change in the years ahead. As Bruce’s condition advances, we hope that any media attention can be focused on shining a light on this disease that needs far more awareness and research.

‘Bruce always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately. 

‘We know in our hearts that – if he could today — he would want to respond by bringing global attention and a connectedness with those who are also dealing with this debilitating disease and how it impacts so many individuals and their families.

‘Ours is just one family with a loved one who suffers from FTD, and we encourage others facing it to seek out the wealth of information and support available through AFTD (@theaftd, theaftd.org). 

‘And for those of you who have been fortunate enough to not have any personal experience with FTD, we hope that you will take the time to learn about it, and support AFTD’s mission in whatever way you can.

The Willis/Heming family statement in full 

‘As a family, we wanted to take this opportunity to thank you all for the outpouring of love and compassion for Bruce over the past ten months. Your generosity of spirit has been overwhelming, and we are tremendously grateful for it. For your kindness, and because we know you love Bruce as much as we do, we wanted to give you an update.

‘Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD). Unfortunately, challenges with communication are just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis.

‘FTD is a cruel disease that many of us have never heard of and can strike anyone. For people under 60, FTD is the most common form of dementia, and because getting the diagnosis can take years, FTD is likely much more prevalent than we know. Today there are no treatments for the disease, a reality that we hope can change in the years ahead. As Bruce’s condition advances, we hope that any media attention can be focused on shining a light on this disease that needs far more awareness and research.’

Bruce always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately. We know in our hearts that – if he could today — he would want to respond by bringing global attention and a connectedness with those who are also dealing with this debilitating disease and how it impacts so many individuals and their families.

‘Ours is just one family with a loved one who suffers from FTD, and we encourage others facing it to seek out the wealth of information and support available through AFTD (@theaftd, theaftd.org). And for those of you who have been fortunate enough to not have any personal experience with FTD, we hope that you will take the time to learn about it, and support AFTD’s mission in whatever way you can.

‘Bruce has always found joy in life – and has helped everyone he knows to do the same. It has meant the world to see that sense of care echoed back to him and to all of us. We have been so moved by the love you have all shared for our dear husband, father, and friend during this difficult time. Your continued compassion, understanding, and respect will enable us to help Bruce live as full a life as possible.’

-Emma, Demi, Rumer, Scout, Tallulah, Mabel, and Evelyn

Willis and his wife Heming Willis also have two daughters, Mabel, 10, and Evelyn, eight, together 

Willis is pictured with his wife Emma Heming in a social media snap 

The family revealed earlier this year that the legendary actor was retiring from show business as his disorder effects his ability to speak and understand language

 ‘Bruce has always found joy in life – and has helped everyone he knows to do the same. It has meant the world to see that sense of care echoed back to him and to all of us. 

‘We have been so moved by the love you have all shared for our dear husband, father, and friend during this difficult time. Your continued compassion, understanding, and respect will enable us to help Bruce live as full a life as possible.’

The statement was signed by Emma, Demi, and his daughters Rumer, Scout, Tallulah, Mabel, and Evelyn. 

Willis shares Rumer, 34, Scout, 31 and Tallulah, 29, with Moore, 60 to whom he was married from 1987 to 2000. He also has two daughters, Mabel, 10, and Evelyn, 8, with his wife Emma, 44. 

FTD occurs when nerve cells in the lobes behind the forehead die and the pathways that connect them change. 

The left temporal lobe is involved in the meaning of words and the names of objects. The right recognizes faces and familiar objects. 

Moore and Heming Willis have forged a close bond; the Ghost actress regularly spends quality time with Willis’ two youngest children during their family get-togethers 

Symptoms are different from just the memory loss that is associated with Alzheimer’s disease. These may include; personality changes, such as becoming tactless, uninterested in others and unsympathetic, repeated and compulsive movements, such as continued use of certain phrases, hoarding and obsession over timekeeping, craving unhealthy food and forgetting table manners, speaking difficulties, including slow speech, grammatical errors and asking the meaning of familiar words like ‘bread’.

Bruce’s blended family issued a joint statement at the end of March announcing that he was ‘stepping away from the career that has meant so much to him.’ 

The statement revealed he ‘has been experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities.’

The full statement read: ‘To Bruce’s amazing supporters, as a family we wanted to share that our beloved Bruce has been experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities. 

‘As a result of this and with much consideration Bruce is stepping away from the career that has meant so much to him.’

The statement added: ‘This is a really challenging time for our family and we are so appreciative of your continued love, compassion and support. We are moving through this as a strong family unit, and wanted to bring his fans in because we know how much he means to you, as you do to him.

‘As Bruce always says, “Live it up” and together we plan to do just that.

After the family went public with news of Bruce’s retirement, fans flocked to social media to share their love for Bruce. 

The retirement announcement marked an end to Willis’ decades-long career, during which he has earned a Golden Globe award and two Emmys.

Willis’ acting career began with small just roles in television shows like Miami Vice and The Twilight Zone in the early 1980s, according to IMDB.

He started gaining attention thanks to his starring role opposite Cybill Shepherd in the ABC series Moonlighting, which ran from 1985 to 1989, but his breakout role was really as John McClane in the hit film Die Hard, which premiered in 1988 and led to six sequels.

‘I think it was his first big film and he wanted to make it right, he wanted to make it work,’ co-star Reginald VelJohnson told People at a 2018 30th anniversary screening of the film. ‘He was more concerned with how to do the role rather than anything else.’

‘This was his first movie, and he was the star of a huge blockbuster and it was very well advertised that he was making $5 million, which at the time was unbelievable,’ Bonnie Bedelia, who played his wife Holly Gennaro McClane in the film.

‘And everybody was like, “Why would you pay $5 million to an untried movie star?” But boy, someone was really smart.’  

WHAT IS FRONTOTEMPORAL DEMENTIA?

Frontotemporal dementia (FTD) affects the lobes of the brain behind the forehead, which deal with behaviour, problem-solving, planning and emotions.

The left temporal lobe is involved in the meaning of words and the names of objects.

The right recognises faces and familiar objects.

FTD occurs when nerve cells in these lobes die and the pathways that connect them change.

Symptoms are different from just the memory loss that is associated with Alzheimer’s disease.

These may include:

  • Personality changes, such as becoming tactless, uninterested in others and unsympathetic
  • Repeated and compulsive movements, such as continued use of certain phrases, hoarding and obsession over timekeeping 
  • Craving unhealthy food and forgetting table manners 
  • Speaking difficulties, including slow speech, grammatical errors and asking the meaning of familiar words like ‘bread’

FTD is rare, making up less than five per cent of all dementia cases.

However, it is one of the most common forms of the disease in people under 65.

Sufferers are usually aged between 45 and 65 at diagnosis.

The rate at which FTD progresses varies greatly, with life expectancies ranging from two years to more than 10 after diagnosis.

As it progresses and more of the brain becomes damaged, symptoms often become similar to those in the late stage of Alzheimer’s.

These may include memory loss and patients relying on others to care for them.

Around 10-to-20 per cent of FTD patients also have a motor disorder that affects their movement. 

This can lead to twitching, stiffness, slowed movement and loss of balance or co-ordination. 

In later stages, such patients may have difficulty swallowing. 

Around one-third of FTD patients have a family history of dementia.

And the condition is often caused by an inherited faulty gene from one of a patient’s parents.

Treatment focuses on helping a person live well by easing their symptoms. 

This may include counselling or a speech and language therapist.

Source: Alzheimer’s Society

Willis went on to star in films like Pulp Fiction, 12 Monkeys, The Sixth Sense and the superhero film, Unbreakable, for which he reprised his role over a decade later in the 2016 film Split and the 2019 film Glass.

Over the course of his four-decade career, Variety reports, his movies have grossed over $5 billion worldwide. 

He has also appeared in a number of television shows, including the beloved classic Friends, for which he won an Emmy, and as the main voice actor in Bruno the Kid.

Willis has also recently completed multiple projects that are in post-production, including Vendetta, Fortress: Sniper’s Eye and White Elephant.

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