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A woman has been left bed bound after claiming she is “allergic to gravity”.
Lyndsi Johnson, 28, has one of the world's least understood illnesses, and spends around 23 hours in bed.
The American, from Bangor in Maine, was diagnosed with Postural Tachycardia, also known as PoTS back in February, 2022.
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Having spent most of the last seven years vomiting, suffering from abdominal and back pain, and fainting on a regular basis, the woman has now opened up about her issues.
Despite taking medication, she has abnormal increase sin heart rate ever time she stands up – and likens it to being “allergic to gravity”.
The former aviation diesel mechanic said: “I’m allergic to gravity – it sounds crazy but it’s true.
“I can’t stand up for longer than three minutes without feeling faint, being sick or passing out. I feel much better if I'm laying down.
“I’m in bed all day, for up to 23 hours a day – I never thought that at 28 that I would have to use a shower chair.
“I can’t leave my house any more.
“There is no cure but I’m so grateful for James and what I do have.”
Originally, when she first started having symptoms, doctors were baffled by the illness – with some event claiming it was an anxiety issue.
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But things took a truly scary turn in October 2020, when she fainted in a lift while on her way to a hospital appointment.
This sparked a downward spiral into more fainting in public places, including the supermarket.
Lyndsi had to stop driving and struggled to even bend over without feeling light-headed.
“I’d throw up so much my heart would start having prolonged QT intervals and I’d be in hospital on cardiac monitoring,” Lyndsi said.
“I was finally able to speak to another cardiologist who recognised that I might have PoTS.
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“I was so thankful to finally know what was wrong with me so I could be treated.”
Lyndsi is now on betablockers which has reduced her fainting to three times a day and helped with her nausea.
Despite her illness, Lyndsi is hoping to move from her flat to a house so she can spend time outside. “If I’m lying down I feel fine but as soon as I stand up I’m dizzy and faint,” she said.
“I’ve really had to adapt to this new life and come to terms with it. I use mobility aids and that really helps for me.
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“I’m grateful for what I have and I’m still able to study music business which is amazing. The rug has been ripped from under my feet – I’ve gone from being super active, to having to lie down all day.
“I can't do a lot of what I used to be able to do, but I've come to terms with that now.”
If you suffer from PoTs and want to share your story, email [email protected].
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